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What I Need Now
When I was pregnant and distraught ten years ago, waiting for a tiny broken-hearted baby to break through my body and face surgery at best, death at worst, everyone in my life offered to do “whatever...
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Let’s Re-brand CHD
Every year businesses re-brand to distinguish themselves in the marketplace. Some, like Target, do it well with their designer-at-a-lower-price products. Some like abercrombie & fitch no fatties...
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Respect the Experts: Part One
When I started to write this post it became really long. I decided to break it up into parts so I could cover the ground without wearing out the reader. This first part is about the seriousness of...
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Respect the Experts: Part Two
It’s Complicated Most people don’t know how the heart works. I didn’t until I had to know. It’s complicated. It’s more complicated than a combustion engine or an aircraft. Unlike a machine, the...
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Respect the Experts: Part Three
Never Better In Part One I covered the serious nature critical congenital heart defects (CCHD) and in Part Two, I addressed the complexity of these birth defects. Congenital Heart Defects (CHD) in...
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Respect the Experts: Part Four
A Trauma Mama is Not A Drama Mama I hope now with the first three parts (One, Two, and Three) of the Respect the Expert Series, that all readers understand that Critical Congenital Heart Defects (CCHD)...
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Greater Than One Percent
A few weeks ago I saw a post by a mom of an autistic child in my blog feed. She was livid about this news out of NYC – about America’s super wealthy “renting” disabled persons for their Disney...
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Half-heart, Whole Body: Part Two, B-R-A-I-N-S
Recently, at the behest of our cardiologist, we met with a neuropsychologist who administered a great many tests and even called our son’s teacher for an interview. There was no recent trigger for this...
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